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Documenting not dying since October 2013.

The 3rd & 4th; And now I'm back on steroids.

The 3rd of June. Long, busy day. I slept until half nine and spent the morning in front of the television, then this afternoon I did a pretty high-intensity workout (for me) - I didn't really let my heart rate drop below 130 for the entire hour and half so I burned 730 calories and got really quite disgustingly sweaty.

When I was done, I ate some chicken, then went upstairs to rinse my hair and got ready to go to Hallfield for the OHS committee meeting. We actually had a quorum! Made up partially by the chef and the groundsman but they were necessary as the main discussion was of the dinner we're having in October (any Old Hallfieldians who read this and want to come back for a fancy dinner and drinks, hit me up). I need to organise a table.

Tim Venner gave me a lift home, and we had a long chat about Masterchef. He is going to The Hand and Flowers next year and I am incredibly jealous. When I got in, I ate my tea and Mommy and I watched Great British Menu.

I am bleeding again and this is just fucked up so I am really glad that I'm seeing Andy Toogood tomorrow because this shit is not acceptable.

The 4th of June.

And now I'm back on steroids. I went to endocrine/haematology clinic with my power eyeliner on and demanded answers. Well, not demanded; I was polite.

We sat down with Andy and I told him all about my totally sporadic bleeding, which he agrees is not good and we need to find out what's going on and not just whack up my estrogen dose again. I had some blood tests to check my thyroid, and he's going to refer me to a gynaecologist at the Women's called Miss Robinson, so hopefully I get in to see her soon.

Then we went back to wait for me to be called in by Ram, which actually happened sooner than I expected. I told him what I'd told Andy and he went to speak to him, I think to make sure the referral is done pretty urgently as he seems quite eager for it to get sorted (as am I)! Then I updated him on my mouth and skin and he had a look and a pinch (GvH doctors like to pinch) and he thinks I need to go back on some steroid, with which I reluctantly concur. We've held it for as long as we can with the topical management, and it's not getting worse, but it's also not getting better. I hate it, but it's necessary.

This afternoon, I watched tv, blogged and Becky came round to show us her victory rolls that she'd done for a 1940's themed school trip today. Mommy went to get Oscar from the vet as he's had his kitty MOT today and his kidneys are not very good. He's very chatty now.

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Mommy bought me some flowers.

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20mg of steroid means 10 extra tablets a day - 4 pred, 2 voriconazole, 4 aciclovir.

The 5th & 6th; Holding onto sanity for as long as possible.

The 1st & 2nd; I feel rather off-colour and a bit like crying for no discernible reason.