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Documenting not dying since October 2013.

The 5th & 6th; Holding onto sanity for as long as possible.

The 5th of June. Oh, steroids. I'm going to be painstakingly monitoring the shape of my face and, I imagine, the amount/quality of my sleep. Face size will increase, sleep will decrease. Holding onto sanity for as long as possible.

This morning I slept until 9.30 which was lovely and had quite a slow morning, just pottering and getting ready for Danny to come. He was a little bit late but then we worked hard for an hour, especially on dumbbell flys on the stability ball which has really worked my chest muscles so that will be interesting tomorrow!

Mommy made some biscuits (white chocolate custard cookies - hard to explain but they're amazing) and cupcakes so I iced those and put some sugar butterflies on them, but they're a bit messy for my liking. Not up to my usual standard because I didn't pipe the frosting. When I can cope better with crumbs, I'll eat some. Stupid tongue.

In other news, I think I might be developing visible abs? It's difficult to tell as my liver scar is really rather in the way.

The 6th of June.

And there goes the sleep. Been awake since before six. Going to be watching much stuff on Netflix over the coming early mornings.

I got my hair washed before nurse Katie arrived to flush my line. Well, it flushed, but it wouldn't bleed back. Hm. Not good. I told her I'd ring the photopheresis team and probably go up to 621 this afternoon. However, she was not particularly persistent with the line, so when Mommy came back from Grandma to coffee, I asked her if she wanted to have a go. She's trained, so it was all fine and sterile, and after some pushing and pulling, we got blood back and I did not have to ring the QE!

While we were doing this, I was texting Dan as he was coming round with his girlfriend Emily who wanted to meet me and I'm glad she did as she's an utter delight. They were a bit late as they came across a poorly hedgehog so called the RSPCA who came and collected it. When they arrived, I made some tea and we had biscuits, and we sat in the living room having nice chats and watching Oscar get stuck in the carpet while we extolled the virtues of living in Boldmere/Birmingham. They eventually had to leave as they had places to be (Jen's!), so then I ate some soup and gave Oscar a massive brush so there was fluff everywhere.

Tonight I'm watching mostly Channel 4 and I've been tweeted by Josie Long so I'm really happy.

The 7th & 8th; Ugh I am just pretty much over life right now.

The 3rd & 4th; And now I'm back on steroids.