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Documenting not dying since October 2013.

The 2nd & 3rd; I think I need blood.

The 2nd & 3rd; I think I need blood.


The 2nd of March. I think I need blood. It was mentioned at hospital that my haemoglobin was a bit low, and I think I'll need a couple of bags before photopheresis next week. It's very boring and annoying, being so tired all the time. I have no appetite whatsoever - some things even taste different. Breakfast makes me feel sick. I just want to be able to move around my house again - this morning it took me nearly an hour and a half to get downstairs this morning.

I had an appointment at the chiropractor at one which was good because my lower back has still been unhappy and very stiff. After I'd been crunched and massaged sufficiently, we had a brief trip into Sutton so Mommy could look at dress patterns and I could get a box to send Benedict the Chimpanzee and the pink/purple bear to Jamie and Georgia in.

Coming home, my lunch was some rice with ketchup, then I uploaded a blog post. Since then, I've made the body of another monkey for Oliver.

I'm glad today is my last day of antibiotics. Hopefully my tummy will then sort itself out. I want to enjoy food again!

The 3rd of March.

There is very little to say about today, if anything at all. I woke up feeling absolutely rotten, like I was going to throw up. Mommy brought me up some water and my tablets, and I spent the morning in bed, drinking the water and trying to summon up the energy to get dressed. 

I did eventually do so, at about half past twelve, and I cleaned my face and brushed my teeth. Since coming downstairs, I have made a monkey head and leg, and we watched Critical from last week. The window cleaner also paid us a visit - is it ever okay to ask them to go away? I just hide or if can't, avoid all eye contact. 

I've just had a slice of toast so far, but I think I will be having scrambled egg on toast for tea. I'm expecting to feel more normal tomorrow. 


The 4th & 5th; It hadn't even crossed my mind that he might die.

The 28th & 1st; Every day my breathing doesn't improve, I worry a bit more.

The 28th & 1st; Every day my breathing doesn't improve, I worry a bit more.