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Documenting not dying since October 2013.

The 11th & 12th; Here is my exhausted, nauseous self.

The 11th & 12th; Here is my exhausted, nauseous self.

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The 11th of September. Trembling again tonight, but not so much as yesterday so I did get some writing done today - mainly about GvHD, a little bit about photopheresis.

This morning Mommy washed my hair, and we rang the QE because my arms are still retaining fluid. I'm going to need the stent putting in. This afternoon I had my pelvic ultrasound! I had to have a full bladder, so by the time it got round to my scan (4.20pm), I was rather anxious to pee. I was scanned, then I was allowed to relieve myself, then I had to have a transvaginal scan which was unexpected but fine. She found no abnormalities, so that means no scrape, just the coil, hooray!

I started The Girl With All The Gifts and it appears to be about zombies which I had not realised. It's good though. Definitely different to the Murakami.

I am worried that my Chris Riddell drawing has got lost in the post.

Last night, after I finished writing, I was feeling sick, and I was so tired and cold, I started getting really scared I was getting poorly and I was crying at Mommy, and I just felt terrible. I asked her to take a photo of me in the position I was in, how awful I was looking and feeling, so that I could put it on here because I feel like sometimes I just show you this brave front of me carrying on and all the positive things, whereas in reality there are times that are utterly shit and I don't expose this side enough. So here is my exhausted, nauseous self.

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The 12th of September.

Terrible night, awake and asleep, no decent chunk of time, horrible. First thing I did was get on the Apple store in all possible manners, but I was too slow, so my new phone will not arrive for 3-4 weeks, frustratingly. Have to cope with shitty battery life a bit longer.

Had my line flushed; that was all very straightforward. This afternoon I went to Fiona's to squidge baby Phoebe. She decided to be awake and smiley and sleepy this time so we made lots of silly noises together and apparently I wore her out as she is fast asleep now.

Tonight I want to eat all the things and Hamilton wants to eat the carpet it seems. It's very loud. I don't think he can actually get at it through the slits in his ball though.

Christine come home tonight!

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The 13th & 14th; Part of me is really sick of life.

The 13th & 14th; Part of me is really sick of life.

The 9th & 10th; I'm having weird food feelings/relationship right now and I feel a bit sick and ugh.

The 9th & 10th; I'm having weird food feelings/relationship right now and I feel a bit sick and ugh.