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Documenting not dying since October 2013.

The 30th & 1st; Tonight we're back to feeling like crying.

The 30th of November. Today has been really productive and I'm quite a chirpy bunny tonight.

It didn't start off particularly brilliantly - I was up multiple times in the night, and when I woke up at eight, I couldn't go back to sleep. But Oscar came to see me and he was sad and quiet so we looked after each other. He was sick later which obviously made him feel better 'cause then he was very chatty. I just wish he hadn't done it while I was having my breakfast.

This morning I read the paper and had an especially sore mouth. My cheeks are coming along, but my tongue is still really inflamed. I also gave the living room a tidy because there was crap everywhere and it was beginning to grate on me.

That all took until about two o'clock, then Mommy washed my hair and I got properly dressed before finally having lunch at three. Thankfully I had porridge for breakfast so that kept me going.

After my lunch, I went up to my bedroom and had Harry Potter on while I tidied it. It's so much neater now, and I have culled a lot of carrier bags (it's useful to have some, but not the ridiculous amount I had). I also have several pairs of shoes I will be putting on ebay, and I am very pleased with it.

Tonight I was able to eat a kiddies' fish pie (small mouthfuls, don't need to chew) which was a nice change, and I am more able to talk tonight, but that could be because I didn't speak much this afternoon. Regardless, I will take it.

The 1st of December.

And tonight we're back to feeling like crying. My cheeks are alright, but my tongue is just agony. Doing anything with it hurts. Difflam isn't helping, it just stings. I'm beginning to worry that the steroids aren't working and I won't be better by Christmas. Because it heals so slowly, it's difficult to tell if it's actually improving at all.

I opened my advent calendars. The Hotel Chocolat one is okay in tiny bits, but the Ciatรฉ one was a disappointing glittery one. Hopefully tomorrow will be better.

I'm wondering if we can ring up hospital and ask Ram to prescribe me some Sevredol or something. Tramadol did sod all.

It's half past seven and I just want to be in bed. I hate this.

advent 1

The 2nd & 3rd; My skin has erupted.

The 28th & 29th; Feeling the urge to weep.