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Documenting not dying since October 2013.

The 19th & 20th; I was glad when it was over.

The 19th & 20th; I was glad when it was over.

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The 19th of May. I think I've had a productive day. Basically crocheting a lot. The weather has been awful - this is not May weather, I find it unacceptable and would like it to be warm now please. This time last year while we were in Lyme, I was able to wear short sleeved tops and skirts! Today, I'm still wearing a thermal barrier vest and a jumper.

I started work on Donna's duck, had lunch, got part-way through the body, then Mommy went to see Grandma. While she was there, I went and shaved my legs as despite it not being particularly warm, I will still have to wear skirts on Thursday and Friday because I've got photopheresis then.

Afterwards, I finished off the duck, so now I can start on a mini Frank for Theo. I'm adapting a pattern for that, so I'm just hoping it works. I think it should; it's not too complicated.

Mommy's voice seems to have made a slight improvement today - she's not had to whisper quite as much. I had a killer headache for much of the day - we took my blood pressure and it was 170 over 114, which is somewhat high! I need to talk to someone about a new BP drug, just one that doesn't massively inflate my feet. 

The 20th of May.

Ergh I feel kind of shit and am really not looking forward to my early start tomorrow. I didn't sleep brilliantly, had weird dreams about it being my birthday and having a party where a bunch of people had been hired to be my "friends", and to make me like them, they wore loads of socks, and none of my actual friends were invited.

I had the hygienist at 10:50, and it wasn't much fun. My teeth are all fine, but I have wear on some of my gums (I guess I brushed too vigorously?) and the huge GvHD ulcer on the inside of my right cheek. So a lot of it was really sensitive and I was glad when it was over.

This afternoon, I was supposed to have liver clinic, but shortly after we'd left, I had a phone call saying Dr. Ferguson wasn't there, so I asked them to reschedule as there isn't much point in me seeing anyone else. I could've then gone to the gym, but it seemed neither my mind nor my body were up for it, so instead I've been curled up, crocheting, and hoping the ab muscle I've pulled stops hurting soon.

The 21st & 22nd; Feeling pretty pathetic.

The 21st & 22nd; Feeling pretty pathetic.

The 17th & 18th; Back to the old routine.

The 17th & 18th; Back to the old routine.